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Another Day I’ll Never Forget

August 7, 2012

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This month is Rett’s one year therapy anniversary. We’re fast approaching his one year anniversary of his diagnosis. I’ve had a hard time this summer just dealing with remembering last summer and all the emotions and decisions that went into all of that. 

 

Yesterday I took Evie to her Sibling Study at Marcus Autism Center. They are doing a study on siblings of autistic children to try to make connections between this eye tracking software and autistic children. This way they could track the eye movement of an infant and know if they were autistic or not. This would help early intervention to start very early.  On the first day Evie had a speech assessment, did eye tracking and I completed a parent survey of her skills. Today was a developmental survey, another eye tracking and the ADOS, which is what Rett received to get his autism diagnosis. 

 

And today Evie was also diagnosed with autism.  I feel like I have to start from scratch because Evie’s strengths and weaknesses are so different then Rett in a lot of ways.  I don’t really know what therapy will look like for her.  I’m so scared for both of them and what the future holds.  And scared for myself and how much I can handle.   I felt like I was already stressed to the max before all this happened. Now I have another child to start trying to get services for, to make the decisions of what therapy is best and where we go from here.  I wish I could pause the world while I try to catch up emotionally and physically. I am so exhausted. 

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9 Comments leave one →
  1. Janet Bailey permalink
    August 7, 2012 9:30 pm

    If anyone can handle this and help your children to the max, you can.

  2. August 8, 2012 12:36 am

    Your children already have a wonderful advantage by having attentive parents who care. What a gorgeous picture!!

  3. Barbara warren permalink
    August 8, 2012 1:02 am

    Bless your hearts, guys. You have beautiful and talented children. God made them with love. To make up your family. You will always help them do their best, and they will excel in so many ways your hearts will swell with pride. Dont be discouraged! God wants the best for all of you every minute of every day. You have been doing your best for your family, and you will keep doing your best. Enjoy every day you have with all of them. Your children are happy little explorers in every picture. I keep you all in my prayers for health and happiness.! Love you.

  4. Kathy Oliver permalink
    August 8, 2012 1:31 pm

    Laura, first know God loves you, I love you and many are praying for you. It’s so hard to get a diagnosis like this especially when you already feel like you are maxed out . I’m sure that this whirlwind of emotions is more than you can bear and that you have been knocked to the ground – But be encouraged ! You are strong! You are not alone! You are in the right place to get the help that Evie and Rett need! I sense that all will be well in time and that you will become a mighty witness and encouragement for other parents who are going through the same thing. Sometimes when the wind is knocked out of us, we need to rest, to be still and listen.
    ” When life is heavy and hard to take, go off by yourself. Enter the silence. Bow in prayer. Don’t ask questions: Wait for hope to appear. ” Lamentations 3:28-30 MSG

    There’s a beautiful, wonderful plan for your children, you and all your family. Do not fear – God is faithful and loves you. Stop struggling and trying to do it all yourself. Look for God sightings ( little ways He is revealing himself to you )- through helpful, kind people He has put in your path, a beautiful sunrise, a smile or hug -He is with you always- rest in that. It will give you strength. Keeping you in my prayers !

  5. Ruth Sims permalink
    August 9, 2012 6:42 pm

    Laura, in the words of your great grandmother………………well………………and she would listen to the words from your mothers lips ,whom God knows has had more than her share of heart aches. look at her good, she has set an example for you. she’s one tough little woman., she will try to help all she can, never give up! your children are precious and beautiful, it was no accident that God chose you to be their Mother. He knows what you are capable of, trust him., even your education was no accident, your husband was no accident either, you chose a fine man, together you can help those children be all
    that they
    can be. I am sure there are studies going on right now, we will find out what causes
    autism. each generation has its trials, and when this too is solved your children will not have been left behind. you will find the strength and courage to go on, one day at a time. one hour at a time. your great grandmother had 4 children in 5 years, a husband in jail, no job, the country was in a worse depression than this one is now, but her children never felt neglected or unloved, you come from a long line of strong women. believe in yourself, and steal a nap whenever you can. I too , will pray for your family, unworthy tho i might be. your great aunt, Ruth

  6. August 10, 2012 3:23 am

    You must concentrate on your children’s strengths. Motherhood will click and you’ll do great. I’ll be praying for you daily.
    Billye

  7. August 12, 2012 8:36 am

    I have Asperger and didn’t get any help so far. I still managed to get through. So don’t worry to much about your children. They will learn to help themselves.

    And you certainly have enough strength for this. You wouldn’t be bloging about it otherwise.

  8. August 12, 2012 8:39 am

    Reblogged this on Nomi Sunrider.

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