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Two Year Blogaversary

September 20, 2013


Well here we are!   Year number two.   That certainly went fast!

This past year has seen us working through ABA, losing Evie’s diagnosis, seeing amazing and exciting gains with Rett and Thad growing, growing, growing.  And my latest announcement: FINALLY Rett qualified for the Katie Beckett Deeming waiver.  Two days ago. An answer to a long whispered prayer.  The reason for the move, the reason for the fight.  He now qualifies for 1 hour of speech, OT and PT a week.   I am so excited!  He has never really had OT on a regular basis and has never had any PT at all.  Now to find some awesome therapists to work with him.

My attitude towards autism and our family’s normal is ever evolving.  Realizing autism is more of a personality trait and accepting Rett as he is has been most of the journey this year.  Everyone has weaknesses, Rett is no exception. And he requires a lot more support than the average person.  But he also has his strengths and that’s a reason to celebrate too.

Rett’s future still scares me.  Nearing five and him falling farther behind is very scary.  I thought we would be a lot further into getting him caught up socially and verbally. But we aren’t.   The concepts he’s working on are more difficult and take more time for him to master.  He’s past all the easy stuff.  I’m expecting at his speech eval in January that he will have made maybe 6 months of progress this year.  That’s what I’m hoping for.  Which would put him at 3.5.   Its a hard pill to swallow.  If effort were enough, we would all catch our children up to on level.  But it isn’t.

Thank you all for reading my blog and sharing in Rett’s journey.  There are some of you that have been here since before he was diagnosed.  Through the scary times, the happy times, the frustrating times.   Here’s to another great year! For Rett and all the amazing things God has planned for his life.


You can read my one year blogaversary post here

One Comment leave one →
  1. September 20, 2013 2:41 pm

    Oh wow, that is awesome that he got the waiver! Fantastic news!!

    I am looking forward to continuing to follow along on his journey. He seems like such a wonderful kid, and I think you are doing an amazing job as his mom, as well as for the other children. You all are an inspiration.

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